Is it really PCOS?

In 2000, my husband and I got married. It was my wedding day, and on the way to the church with my maid of honor, I was looking in her mirror in the car (she was driving..lol), when I noticed a stray hair on my chin, I asked if she had any tweezers, she said no, so I just used my moms when I got to the church. Fast forward a couple of months later…I started noticing rapid weight gain, but didn’t think much of it, figured that just comes with being married. Then my period basically became non existent. While I have really never been regular, this was a new one to me. I would at least have a period every couple of months. Then I started getting acne, and I mean a LOT of acne. How weird, I though. I never had much acne going through puberty, but still, I didn’t think it meant much of anything.

Fast forward to 2004…I went to a new gyno who was recommended by my primary care doctor, because my primary care doc thought I had something called Poly Cystic Ovarian Syndrome. So, I go to this gyno, and immediately didn’t care too much for her. She was just not very thorough. She looked at me, told me that I indeed have PCOS, and that she is giving me Progestine (something like that, I don’t remember the exact name of it) to get me to start my period and she sent me on my way. Day 9 into the progestine (or whatever it’s called) I stared gushing, and gushing, and gushing, and gushed for 4 days until enough was enough. I was literally wearing adult diapers and soaking them, and add to that, the cramps were literally unbearable. I was also super dizzy when I stood up. So, my mom called the Gyno to ask what to do. She told my mom to bring me in to the ER (it was morning), so off we went. I was scheduled for an emergency D & C.

Well, the period stopped and I had to follow up with her in 3 weeks. I did, and she told me all looked well. I don’t even remember if she gave me anything, but I don’t think she did, I think she just sent me on my way. Anyway, so that was the last time I went to her. I have been to a couple other gyno’s and basically have given up because I just feel like they don’t really understand PCOS. I had one recommend me seeing an endocrinologist, which I did, and he was appalled as to why I was seeing him. He had not even heard of PCOS and he was about 80 years old. So, that was another big let down.

Needless to say, I haven’t been to the gyno in a year and a half or so. I know I need to go, but It is just very frustrating because all of the gyno’s around my area act as if they don’t know what they are dealing with. Maybe it’s me, I dunno. But anyway, on to what this entry is really about…I have an aunt who is an RN. She and my uncle both are RN’s..and they are wonderful, and I love them soooo much, that’s beside the point though..right..haha. Anyway, she told me she thinks that I have Cushing’s syndrome. Well, I looked up Cushing’s, and low and behold, the symptoms are mostly what I have, but the symptom’s are also very similar to those of PCOS.

So, I am confused…I really don’t know which step to take. I just want to get better. I want a child! I am 30 years old and my husband and I have been married 10 years. I feel we are ready, but I also know that it is up to God. But I look around and see everyone else getting pregnant, and while I am happy for them, I am also sad at the same time. I also have extreme anxiety and depression. I have been having anxiety issues for as long as I can remember. I can not drive and can not stay alone due to anxiety. I want to get better. I do I do! I read that cushings syndrome is cureable, and PCOS is not..so if I had to choose, of course I would choose cushings I guess. I’d rather be normal, but hopefully whoever read’s this, knows what I mean.

Anyway, if anyone runs across this and has any questions, and/or suggestions, please let me know. Sometimes I feel like I am in limbo…mainly due to the fact that we have no insurance, so not many health care choices really.

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